Dylan - a summary

~ Ok~

So here we are in week 783—give or take a week- of my daughter ‘s serious health problems. One week after surgery number 59!

To sum it up, my 3^rd child, Dylan, was born without an esophagus and was operated on hours after being born. The first colon interposition ( make a esophagus out of intestines ) had too many problems. Lungs could not grow right, digestive system totally shut down, and feeding through a heart IV. After finding the “RIGHT” doctor we were on the road to recovery. After age 8 we had a few good years. At 14 things changed and we where back in hospital again with stretchings and dilatations.

The back doctor found scoliosis but said it was not enough to warrant alarm. ß wrong!

Dylan’s lungs are now down to 64 % working order. The curves have started crushing them down. We also have a 90% curve in esophagus. We now look to a spine fusion in Jan. The freak out is that it will be a front and back surgery to get where we need to be.

This is where we are and my wife Susan and I are really overwhelmed.

Susan has always been my rock and a wealth of knowledge. Her sudden shock and depression has got me worried as well.

Today we decided it was better if she did not work and we just let go and let God take it for here in regards to our finances. I will have to work a bit more on website and such to make the ends meet but I feel she needs to be home not only for Dylan but for herself and rest of the family.

What a long and rough road we have ahead of us.