Hindsight- when did I become so popular?
We are now is a strange place at my house. Facing Dylan’s upcoming surgery, the tension in the air is so thick that you can cut it with a knife.
Dylan doesn’t want to talk to Susan. She sees too many things that ‘mom’ is trying to control. “It’s my body and I should have a say so in it.” She is 15 – but does she have the knowledge. Dylan’s nerves are on end.
Jeffrey, my 16 year old, sides with his sister and says she needs to talk with a shrink and get something for her depression.
Susan , who has taken over and run the medical gambit of Dylan for 16 years is now in different territory. ….and with it my loving wife is getting hit.
First dealing with a doctor who did not see the problem in the first place, and now changing mid-stream and praying that he knows what he is doing.
Second dealing with insurance, doctor bills and stupid people who don’t see a connection. Our regular doctor asked Dylan to do more exercise. Dylan needs to burn more calories? Foolishness.. we are feeding her to thru a g-tube to get more in her.
Third, teenagers. We had enough problems with Jeffrey and his ‘black stage’ but now this is too much for Susan. Dylan is taking a stand and just wants a pump to fed her. She has lost weight since the feeding tube has been put in.
So today, Susan quits work. She just got back into the work force a month ago. We have been struggling to get ahead just so went the bills hit we have some light. – So why should we expect any change in Susan being able to work?
Susan had a wonderful fulfilling job when Dylan was born. She was a child advocate for kids with disabilities. She loved helping out the kids who could not help themselves. Many where locking in rooms or closets because they where slow. The schools where happy to take the money for them, but did not help them in anyway.
Other jobs have come and gone but because to health problems, Susan jumps back in and takes charge. We are there again.
Susan has become very short with others right now and all are feeling it. She is crying at the drop of a hat. Lat night a creditor called wanting to get back for one of Dylan’s surgeries two years ago. It’s one that we almost lost her on surgery table because of LATEX. We heard nothing after all this and –boom- “we want 1700.00 dollars.” URGH~ What? -- “Can you pay that today?”
We have great medical… but because the surgery was not ‘completed’ Blue Cross doesn’t want to pay. – They had to stop or she would have died.
This did not set will with my wife and it went downhill since there.
My popularity comes from being downstairs in the quiet part of the house. Since I am an interesting but non-active party at this time it is like each person in the house has to campaign to get my side. My problem is that I see both sides and just want to be a listener.
Next we see if a feeding pump helps get weight up and if weekend in a tense house breaks anyone. Dylan has already called and asked Susan and her to have a talk….
